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March 22nd, 2007

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11:39 am - The horror.
It's not an emergency this time, but I seem to have another kidney stone. We'll get confirmation today (I had a CT scan yesterday). I noticed funny-colored urine, and at *another* doctor's appointment I had a high blood pressure reading, so I went in to see my super-awesome MD, Dr. Maggie. I have no idea how I would be coping with this kidney malfunctioning with a regular doctor; Maggie has rocked really hard in every conceivable way.

Anyway, the urinalysis showed crystals and blood, so off I went for a CT scan. The crystals are calcium oxalate, which means that I've now been advised to avoid about ten of my favorite foods. Rhubarb! Spinach! Beets and sweet potatoes! Francis and Danny squawked hardest about chocolate, but pffft: I'd happily give up chocolate if it meant I got to keep everything else on the list. At least garlic isn't a culprit. I might just have jumped off a bridge if I got told I couldn't eat garlic.

Have been feeling utter crap, and I kind of assume that my wonky urinary tract is to blame.


In other news, I'm trying a new drug for my headaches, which my new neurologist thinks are "hemicrania continua" and not migraines. Indomethacin is the stuff, it's an old, relatively dirty NSAID (it's hard on kidneys and livers, as well as stomachs). I think it's helping, but I could just be trading headaches for tummy aches, so I'm not convinced it's The Answer.

Oh, and I have a cold. And my period. And something I ate disagreed with me.

When do I get my new robobody? Because I am all the hell done with this one.
Current Mood: whiny

(8 comments | Leave a comment)


[User Picture]
Date:March 22nd, 2007 04:05 pm (UTC)
Oh no! So sorry to hear it.

Shout if you need anything.
[User Picture]
Date:March 22nd, 2007 04:32 pm (UTC)
at least there's garlic... and eating more of it might help with other probs?

i'm writing this on my phone, so pls forgive typos... linc and i are at the library, surrounded by energetic toddlers and lithe young moms, with the odd nanny or grandma mixed in. i'm feeling pretty old and decrepit, tired and creaky.

and then i read your post, and i'm thinking, hey, no kidney stones or migraines, and i can nibble my emergency scharffenberger bar if i wanna! so... here's hoping you run across someone whose situation makes yours seem not so bad... heck, maybe even the thought of being a toddler wrangler is enough to give you the vapors! we can trade difficulties then...

in any case, that was a long way of saying thanks for helping me put things in perspective, and a genuine hope for your troubles to ease soon.

goin to stamford? have fun, wish i could too!
[User Picture]
Date:March 22nd, 2007 05:11 pm (UTC)
Oh no! Poor you! How I sympathize with the stone-ridden, having all to often been one myself.

I'm on the low oxylate diet too. Tho' I blatantly flout the whole chocolate rule, and I don't really worry too much about black pepper and parsley because let's face it, you don't eat that much at once. And luckily, I HATE beets.

You can indulge, my own nephrologist said it was okay. But if you have a spinach salad, don't have a chocolate bar the same day. And keep extra hydrated, so the concentration doesn't build in your kidneys. Also, citrus juices, especially orange juice (NOT calcium enriched!), help clear oxylic acid out of your kidneys, because citrate binds with it.

I know I'm being an annoying know it all (sorry!), but make sure your parathyroid hormone (PTH) level is checked, if they haven't done it already, along with blood calcium levels.
[User Picture]
Date:March 22nd, 2007 06:44 pm (UTC)
We checked blood calcium, and it was fine; dunno if PTH was on the metabolic panel we just did, but if it wasn't, we'll get it next time.

*Please* be a know-it-all! I thought I remembered that your stones were oxalate, too.

My doctor gave me the same advice about moderation, vs. total avoidance. But I am sure there have been whole meals I have made up of just foods on that list: spinach salad with beets, tofu, dried cranberries, and nuts, for instance. *sigh*
[User Picture]
Date:March 22nd, 2007 07:28 pm (UTC)
Mine are calcium oxylate. Not surprising, that's the most common kind. :-\

The parathyroid is four little glands around the thyroid that regulate blood calcium. I *think* if blood calcium is fine than that PTH probably is too, but you might want to ask about it. It's a common thing to check with mulitple stones that close together. I've had mine checked a number of times.

I highly recommend www.litholink.com. They have a lot of good info, and a really detailed chart of how much oxylic acid is in most foods. My urologist is part of their network and I've found answers to lots of questions there.

Good luck! Keep me posted, and you can email or call if ever want to. Be positive...kidney stones don't usually mean your kidneys are "sick". It's just an annoyance, albiet a painful one.
[User Picture]
Date:March 22nd, 2007 08:34 pm (UTC)
Ouch! Hope that you get rid of these stones with less pain than the last ones. And that once they have found out the cause of the headache, they can find some better drugs for it.

I got a "don't eat any of your favorite foods" from my doctor when I was having indigestion problems; fortunately, losing weight, sleeping on a slanted bed, and not having a big meal late seems to eliminate the problem. Hope that drinking lots of water, or some other suggestion, lets you eat yummy foods, at least in moderation.
[User Picture]
Date:March 23rd, 2007 01:27 am (UTC)
I'm sorry the kidney stones are back, but glad the indomethacin is helping somewhat. I had to take it at one point for back pain, and it worked very well. Haven't tried it for migraines, though.

We've had the discussion before about not being able to give up garlic, so it's a good thing it's still on the list. But it sucks to have to give up rhubarb just as it's about to come into season. Drink plenty of water so you can counterbalance a slice of strawberry-rhubarb pie!
[User Picture]
Date:March 23rd, 2007 08:13 pm (UTC)
okay, the chocolate would KILL me. Everything else I could live without.

As for robobodies...I don't know, but cuteoverload.com has a robotic baby seal that's supposed to improve the moods of the elderly in their "cute or sad" section. Maybe it works on stoney head hurtey people, too.

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